Health 21 December 2017
Every morning, I wake up and take upwards of 20 pills. And no, I am not 90 years old. From the outside, I look like an ordinary, exhausted, 24 year old striving to find balance and contentment in all aspects of my life: I work part-time for my namesake PR firm, frequent classes at DePaul University for my Master's program and attend the occasional industry party. Where I differ is under the skin: I have chronic Lyme disease.
Two years ago my world was turned upside down by an undiagnosed illness. I had flu like symptoms, intense joint pain and began to lose my memory and hearing. While I was once a thriving, productive member of society, I found myself essentially bedridden with no answers. Because I had multiple symptoms of many other chronic illnesses, such as Thyroid Cancer, MS, Lupus, Leukemia, Fibromyalgia, Non-Hodgkin's Lymphoma, and Chronic Fatigue Syndrome, I went through two solid years of medical testing and retesting, with negative results each time. I was eventually told by one of the specialists that my illness was "all in my head." It took me two years and eight specialists to find a doctor that would go on to test me for Lyme disease. With a long track record of seeking answers, I finally got one. When I was diagnosed, I had no idea that this illness would go on to positively impact my life.
According to Global Lyme Alliance, "Lyme disease is a complex infection that can affect various systems in the body including the joints, nervous system, heart, and skin. Lyme and other tick-borne illnesses often go undiagnosed and untreated, leading to deep-seated infections and long-term impairments. Many symptoms of Lyme are similar to other illnesses, which complicates diagnosis."
Chronic Lyme disease is a hot topic in the medical field: traditional MD's insist it does not exist or that it cannot live in the body past 30 days but upwards of 300,000 U.S. residents tell another story. According to Global Lyme Alliance, 55 percent of Lyme disease diagnostic testing is inaccurate and more than 20 percent of those diagnosed with Lyme go on to experience severe symptoms past 30 days. Most battling Lyme do not have medical treatment covered by insurance and spend thousands of dollars every week to get the care necessary to stay alive, including myself. When I talk about my battle with Lyme, as horrible as it may be, I always say that I am one of the lucky ones because I am able to afford treatment. Most cannot and suffer the long-term consequences of untreated Lyme disease that can tragically end in death.
Alex Moresco (R) at Lyme Disease Fundraiser
After having to take a massive step back from work to receive treatment, I refocused my efforts on helping the hundreds of thousands of people suffering from my “invisible" illness. Through a mixture of research and reality TV (former Real Housewives of Beverly Hills star Yolanda Hadid is closely involved in the organization), I discovered the Global Lyme Alliance and quickly realized that I could leverage my professional expertise in PR, marketing and social media to fuel my personal passion of raising awareness and funds for Lyme disease. In that moment, I felt a bit of normalcy return to my life as if my old and new world had married in the most authentic way possible. I felt more hopeful and confident in my personal and professional purpose than ever before.
“People who are passionate and connected to any cause, especially those that are disease related, can truly make a difference in people's lives. With Lyme disease, it's patients like Alex, who have personally committed to take on this challenging and often chronic disease through raising awareness of, and funding for, improved understanding, diagnosis and treatment. She is a shining star for all those suffering from Lyme disease and admired greatly by all of us here at the Global Lyme Alliance."
– Scott Santarella, CEO of Global Lyme Alliance.
Alex Moresco (R)
While my battle with chronic illness took away my drive to be a public relations tycoon, it afforded me a renewed spirit in helping others. As a result of my day-to-day fights with Lyme and weathering the storm, I have been blessed with mental clarity. A chronic illness like Lyme disease is an emotional roller-coaster to say the least. To boot, it is a humbling transformation that makes you realize just how insignificant your “first world" problems.
Freelance writer Kerry J. Heckman had a similar epiphany after being diagnosed with Chronic Lyme disease and autoimmune illness.
"When I was diagnosed with Lyme and autoimmune illness I realized how small the things I used to worry about were and refused to waste another minute of my life not following my passion. I consider my diagnosis my wake up call--a roadblock that was telling me I was headed in the wrong direction and needed to turn around. I'd always loved to write, but being diagnosed with Lyme gave me a story to tell and a way to connect with other people through my words. It is often the greatest hardships that help you find your voice."
While Heckman uses her journalism skills to advocate for Lyme disease awareness, I turned to what I knew: public relations. I tasked myself with getting an underrepresented subject into the media. How does one do that? They throw an unforgettable party. Knowing the Global Lyme Alliance was based on the East Coast and potentially had the opportunity to expand West, I knew this was a golden opportunity to make a huge impact. After relentlessly emailing the Global Lyme Alliance for three months, an email from their team finally made its way to my inbox in May.
An important word to keep in mind when you are chronically ill is "persistence." I have always been a persistent person, originally stemming from wanting to prove cynics wrong that made a snap judgment on my skill set based off of my age without knowing me. However, fighting a chronic illness awakens a new kind of persistence. Not only are you battling a life or death situation, but you feel a dire urge to do something about it for others that potentially have it worse than you do. In my initial outreach to GLA, their response was skeptical at best- and for good reason. Here I was, an unknown recently diagnosed 24 year old asking them to let me throw a namesake event for their organization in a brand new market. While everyone involved eventually agreed that Chicago was the right move for growth, what they didn't understand was: I was never going to take no for an answer. After my life was turned upside down, I was searching for a purpose and due to my severe memory loss, I had to be honest with myself - it could no longer be work. Persistence in a personal passion makes you do crazy things and sometimes those crazy things actually work out.
I quickly connected with another GLA volunteer based out of Chicago, Kasey Passen, and spent the next four months on the phone asking for donations: you name it, we asked for it. Building on persistence, living with a chronic illness takes your ability to be resourceful through the roof. You have to work ten times harder than the person sitting next to you to accomplish the task at hand but personally, that just deepens my drive to not only get it done, but get it done right. Through the planning process, I fused my PR skills into everything I did. If I didn't have a contact somewhere, I found a way. If someone didn't reply, I followed up. Long story short: never be afraid to cold email someone and ask to have a quick call. Nine times out of 10, they will give you 10 minutes of their time if you have a clear ask.
"Invest in taking a personalized approach when reaching out and making the ask. Avoid beating around the bush - clearly outline your objectives and communicate how your organization and the targeted brand align and benefit one another. Additionally, make it easy for them to want to help you by conveying the impact your organization or event has made along with other creative ways they can cross-promote your cause. PR reps need to know the who, what, when, where and why so they can relay the value and authenticity of the opportunity, outside of just doing good, to their client in hopes they will jump on board," says Lindsey Palmer, founder of PR and brand strategy agency Palmer Public Inc.
“They say there's no “i" in team, and in truth there's no “i" in PR either. In this industry, it's nearly impossible to exist in a vacuum. Working creatively and collaboratively always leads to bigger successes, and surrounding yourself with a group of people all working toward the same goal makes the long days and extra work so much more meaningful." - Natalie Mazzarella, Publicist and Content Creator.
In the end, by strategically leveraging my professional expertise and documenting my Lyme story and relationship with GLA on the first-ever “PRGirl" web series, The SubLyme Soiree was a huge success. We doubled our fundraising goal and brought in over $60,000. The energy at the sold out event space was absolutely electric and I largely believe this was because of the team I surrounded myself with. Many of us in public relations are not only workaholics, but control freaks. We like things done a certain way, at a certain time and OUR way- which is not always the right way. In business, I always knew to surround myself with people that were not only better than me, but also carried a varying skill set that would add value to the task at hand. The same can be applied to fueling personal passions, whether it is launching a side project or working with a nonprofit.
While our first instinct when building a brand is traditionally to move as quickly as possible, according to publicist Natalie Mazzarella, we should be working in collaboration with others:
“They say there's no “i" in team, and in truth there's no “i" in PR either. In this industry, it's nearly impossible to exist in a vacuum. Working creatively and collaboratively always leads to bigger successes, and surrounding yourself with a group of people all working toward the same goal makes the long days and extra work so much more meaningful," Natalie Mazzarella, Publicist and Content Creator.
Fellow Lyme advocate and writer Hannah Wright put it best: "Lyme disease made me comfortable in my own skin, which is ironic because our bodies are literally attacking us." I would have to agree with Wright- going to bat for something you truly, deeply believe in takes the fear out of failure versus success: ultimately, you will step up to the plate and get it done.
Author Ally Hilfiger believes we all have the power to do something meaningful with our lives:
"After a very long battle with Lyme disease, I chose to use my platform and business skills to help raise awareness and funding for an important and unacknowledged disease instead of wallowing in self-pity. Standing up to make a difference in the lives of our children and future generations, who are most at risk at getting this disease, has given me inspiration and motivation to push forward and stay healthy and strong. We all have the power to do something meaningful with our lives, and I am grateful to have the experience in business to be able to help." – Ally Hilfiger, Author, Advocate and GLA Board Member.
I may only be one voice out of thousands, but I am happy to share my narrative in hopes of spreading light and awareness to this important invisible disease. When you are faced with adversity, you can do one of two things: roll over and let it become you, or stand up and do something about it. While a chronic illness or misfortune will become ingrained in who you are, in helping others we help ourselves heal.
5 Min Read
Sometimes it takes falling to rock bottom in order to be built back up again. I learned this many years ago when the life I'd carefully built for myself and my family suddenly changed. But in those times, you learn to lean on those who love you – a friend, family member or someone who can relate to what you've been through. I was lucky enough to have two incredible women help me through one of my lowest moments. They taught me to love myself and inspired me to pass on their lessons each da
If it weren't for the empowering women who stepped up and brought fitness back into my life, I wouldn't be standing – in the door of my own business – today.
In 2010, I was a wife, a mother of three, and had filtered in and out of jobs depending on what my family needed from me. At different points in my career, I've worked in the corporate world, been a stay-at-home mom, and even started my own daycare center. Fitness has always been a part of my life, but at that point being a mom was my main priority. Then, life threw a curveball. My husband and I separated, leading to a very difficult divorce.
These were difficult times. I lost myself in the uncertainty of my future and the stress that comes with a divorce and found myself battling anorexia. Over a matter of months, I lost 40 lbs. and felt surrounded by darkness. I was no longer participating in my health and all efforts to stay active came to a halt. I didn't want to leave my home, I didn't' want to talk to people, and I really did not want to see men. Seeing my struggles, first my sister and then a friend, approached me and invited me to visit the gym.
After months of avoiding it, my sister started taking me to the gym right before closing when it wasn't too busy. We started slow, on the elliptical or the treadmill. This routine got me out of the house and slowly we worked to regain my strength and my self-esteem. When my sister moved away, my good friend and personal trainer started working out with me one-on-one early in the morning, taking time out of her busy schedule to keep me on track toward living a healthy life once again. Even when I didn't want to leave the house, she would encourage me to push myself and I knew I didn't want to let her down. She helped me every step of the way. My sister and my friend brought fitness back into my everyday routine. They saved my life.
I began to rely on fitness, as well as faith, to help me feel like myself again. My friend has since moved away, but, these two women made me feel loved, confident and strong with their empowerment and commitment to me. They made such an incredible impact on me; I knew I needed to pay it forward. I wanted to have the same impact on women in my community. I started by doing little things, like running with a woman who just had a baby to keep her inspired and let her know she's not alone. I made sure not to skip my regular runs, just in case there was a woman watching who needed the inspiration to keep going. These small steps of paying it forward helped me find purpose and belonging. This gave me a new mentality that put me on a path to the opportunity of a lifetime – opening a women's only kickboxing gym, 30 Minute Hit.
About four years ago, I was officially an empty nester. It was time to get myself out of the house too and find what I was truly passionate about, which is easier said than done. Sitting behind a desk, in a cubicle, simply didn't cut it. It was hard to go from an active and chaotic schedule to a very slow paced, uneventful work week. I felt sluggish. Even when I moved to another company where I got to plan events and travel, it was enjoyable, but not fulfilling. I wanted to be a source of comfort to those struggling, as my sister and dear friend had been to me. I wanted to impact others in a way that couldn't be done from behind a desk.
I began to rely on fitness, as well as faith, to help me feel like myself again.
When I heard about 30 Minute Hit, I was nervous to take the leap. But the more I learned about the concept, the more I knew it was the perfect fit for me. Opening my own gym where women can come to let go of their struggles, rely on one another and meet new people is the best way for me to pass on the lessons I learned during my darkest times.
Kickboxing is empowering in itself. Add to it a high energy, female-only environment, and you have yourself a powerhouse! The 30 Minute Hit concept is franchised all over North America, acting as a source of release for women who are just trying to get through their day. I see women of all ages come into my gym, kick the heck out of a punching bag and leave with a smile on their face, often times alongside a new friend. 30 Minute Hit offers a convenient schedule for all women, from busy moms to working women, to students and senior citizens. A schedule-free model allows members to come in whenever they have a free half hour to dedicate to themselves. Offering certified training in kickboxing and a safe environment to let go, 30 Minute Hit is the place for women empowerment and personal growth.
Through my journey, I have learned that everyone is going through something – everyone is on their own path. My motivating factor is knowing that I can touch people's lives everyday just by creating the space for encouragement and community. It's so easy to show people you care. That's the type of environment my team, clients and myself have worked hard to create at our 30 Minute Hit location.
Fitness saved my life. If it weren't for the empowering women who stepped up and brought fitness back into my life, I wouldn't be standing – in the door of my own business – today. The perfect example of women empowering women – the foundation to invincibility.
This article was originally published September 12, 2019.